Answer Your Research Questions About Primary Biliary Cholangitis
Insights from across the patient journey
PicnicResearch’s primary biliary cholangitis (PBC) registry offers high-quality, longitudinal data for robust evidence generation to advance PBC research.
Meet your real-world evidence needs
5+ years of retrospective data per patient and indefinite prospective data
Structured and unstructured data – including about itching – abstracted from medical records across all care sites; collect patient-reported data through a tailored PBC-40 ePRO
Targeted and flexible recruitment channels ensured a representative PBC patient population
Explore PicnicResearch’s PBC Registry
Variables captured across the patient journey:
- Demographics
- Treatment history
- Disease history
- Labs & measurements
- Mitochondrial antibody pres.
- Alkaline phosphatase
- Vital signs
- PBC stage
- Aspartate aminotransferase
- Alanine aminotransferase
- Bilirubin
- Surveys & clinical assessments
- PROs
- PBC-40 administered every 3 months
Who we serve
Get the endpoints you need, faster and more easily.
Access complete data for more informed decision making.
Build a body of real-world evidence around your target disease or drug.
Demonstrate utilization and value to all stakeholders.