PicnicResearch’s Hemophilia Registry

Answer Your Hemophilia Research Questions

Registry insights from across the patient journey

Generate high-quality, longitudinal evidence to answer your hemophilia research questions with PicnicResearch.

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Why PicnicResearch

Meet your real-world hemophilia evidence needs

Longitudinal, consistent insights

5+ years of retrospective data and indefinite prospective data for each patient

Deep data from across the patient journey

Structured and unstructured data abstracted from medical records across all sites of care; collect custom bleed, treatment ePROs, QoL, and other tailored patient assessments

Representative population

Quality insights from a population that matches your target demographic 

Robust Patient Insights

Explore PicnicResearch’s Hemophilia Registry

Variables captured across the patient journey:

  • Demographics
  • Treatment history
  • Disease history 
  • Labs & measurements
    • Anatomic site of bleed
    • Bleed cause
    • Bleed treatment
    • Anatomic type of bleed
    • Vitals
    • Common labs such as CBC
  • Surveys & clinical assessments
    • Tailored PROs
    • PROMIS-29 (QoL) 
    • Custom bleeds and treatments surveys
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